Joseph's first Christmas sorta:)

We have spent the last 3 days doing nothing but enjoying ourselves and hanging out in our pj's:) of course i still have to cook and clean, but i have not minded. I feel so much better when i can stay on top of the cleaning. The cooking i could do without, but then we would starve or worse have to eat alsup's burritos, which are ok every now and then, cause eating anywhere else costs almost an arm and a leg these days, with the boys growing so fast:( Enough jibberish on with the fun stuff:):):):):):)

Isaiah's favorite line all weekend was " this is the best Christmas" i'm pretty sure he will be saying it next year as well;) We got him an optimus prime jetfire transformer, a lego ninjago dragon set, and a batman bat wing for there ever expanding collection of batman toys. We had the kids draw names this year and chloe bought him a obi one knobe lightsaber. He has been playing with one after another:) They kept asking to go to grandma's:(

Zachery, not as enthusiastic as Isaiah, but still excited:) We got him a transformer firestation house, a lego ninjago skull truck, and a darth vade lightsaber. Joseph (aka: Mommy) got him a bumblebee to go with said station and r2d2 and the gold guy (as zack refers to him) to expand there star wars collection they will soon have:)

Chloe has been watching christmas cartoons alot lately, so she is all about santa. Tonight she approached me and said" santas not coming cause there's no snow:(" then as she was laying down to sleep, she threw this out there " santas going to bring us more presents" Never a dull moment with that girl:) She got a kitchen with 101 pieces of food, a shopping cart, and a pack of play-doh. She runs around with her shopping cart and yells, " going shopping cart, going shopping cart," like i said never a dull moment:) Zachery got her a strawberry shortcake treehouse, while she was opening it, he informed her he had wanted to get her a lalaloopzy one, but it had been to much money. She copied isaiah's saying  alot:)

Joseph got to celebrate Christmas as it should always be celebrated, at home and not in a hospital:) For that i'am very thankful. Of course he is still little, so he didn't dig in and tare open any gifts, but sat, chewing on his paci, as the boys very enthusiastically tore them open. He got an activity walker, a fisher price lil' zoomers, which his older siblings have really enjoyed, and a leapfrog drum. Isaiah got him a hippo that tips over and drops out balls, which is his favorite so far:)

Wonderful Christmas:)

Busy, Busy, Busy!!!!!

Joseph has been in and out of the hospital for the past month:( Which makes for a TOTAL(brace yourself) Almost 9 months altogether:( So this week as i was getting the house ready for Christmas and amidst all the dr and therapy appointments. I have been enjoying the cleaning and chaos of our everyday life:) Because they are so much more fun then sitting in a hospital room. I'm trying my best to let things go that people are having a hard time understanding. So i'm going to vent a little bit, if i upset anyone, i'm sorry it is not my intention, i'm just having a hard time crasping why it can't be left alone that we aren't coming to seminole for Christmas. It is very hard on us not being able to be with family, especially at this time. We miss everyone and Love all of You!!! I don't want Joseph to get sick, he has been battling something for the pass 6 weeks and is finally his happy self again. I know he can get sick here as well as there, but the difference is here he only gets out of the house for dr visits and only if the weather is decent, to get there we have to take him out in freezing cold air which irriates his lung diesease, he's already wheezing a tiny bit by just getting out for yesterdays visit. So PLEASE stop asking us to come our mind is made up!!!! and you just make it so much harder on us by not letting it be. If you want to see us so bad come visit us, we would be glad to have you. Be thankful for your healthy kids each and every day!!! I know i'am, because it is very hard when they are not:( Merry Christmas and have a blessed and happy new year:)

I'm going to be enjoying some much needed quality time with my kids, after all 9 months of the past year they haven't had a mommy and also some time with my hunny who also has been without a wife:(

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Happy Thanksgiving:)

Happy Thanksgiving:) lots to be thankful for, God, health, husband, kids, family and friends:) Had hoped to be home by now, but it is right around the corner. Many of you know that Joseph went to surgery( number 7) on Monday. Well he had a Nissen fundo, which is where they wrap the top of his stomach around his esphagus. They also put back his Mickey button:( He also had a hernia in his private area, so he had that fixed too. He did good, very little scar tissue, which has made for a speedy recovery. He is up to full feeds:) they have also taken off his oxygen:):)Praying it will be for good this time, it's been off since 4 yesterday, but we will see. Last time it lasted for 24 hours:/

Thank you Lord for giving us Joseph he has taught us so much in his short little life. Not only in our physical life but our spiritual life as well. For my wonderful husband who has done an excellent job of holding down the fort. For my mommy who has been there for us so much. For the health of all our children, Joseph has his issues but you have always healed him for us. For drs, nurses, paramedics, flight for life and fast responders. If it wasn't for God and all those people, Joseph wouldn't be with us today. For Your constant watchful eye over us and always knowing what we need. You have blessed us so much, and we are so grateful for everything. Thank you:)

Have a happy thanksgiving:) Eat some turkey and fixin's for me:)

Wednesday November 16, 2011

Sorry these are getting so spaced out, but it's been hectic this week. First let me say Joseph is doing good and looks great on the outside. But the inside of him has some issues that need to be fixed. I already shared about his swallow study, and all that followed it. So a few of the drs that have helped out with josephs care were concerned that he might have reflux. That lead to them doing a test yesterday to see if that was the case. Brokenhearted I have to tell you he does reflux a lot, i will bluntly tell you as his dr told me, this could kill him if we don't fix it. Monday afternoon Joseph is going in for his 7th surgery of his short little life. They are either wrapping his stomach 270 degrees or using some type of patch like thing to wrap around the bottom part of his esphagus. He will also get his Mickey button placed back in and will have it for an indefinite amount of time.

This breaks my heart:')

Lord you have plans for this boy that I cannot see, I only ask that Your will be done, and not mine. I give him to you with my whole heart, He is yours forever but ours only for a moment. I thank You so much for letting us have him, he is such a sweet boy and he has touched so many lives already. Your will be done, I surrender him to you.

Monday November 14, 2011

Joseph had his swallow study today. He didn't pass:( he did good enough that he doesn't need the g tube put back in, but the dr thinks it would be better for Joe to by pass his throat area. So he keeps the tube down his nose for now and they will reevaluate him in 6 weeks. If he is still doing what he is doing now g tube goes back in. All though this isn't good we finally might have an answer as to why he still needs to be on oxygen. So a little helpful but not what we wanted to hear. Hoping to be able to go home at the end of this week or over the weekend guess we wait and see what else happens this week. The dr wants him off one more med before he can be sent home, if all goes well he should be off it by Thursday or Friday. If not I think I'm going to go home for the weekend if he's not so I can be home for zacherys birthday on the 21.

Sorry it's taken so long

Joseph had a rough start to this week. But he is doing so good now. He is driving me a little crazy and he frustrates me beyond words cause he's not going to sleep as easily as he did at home. He thinks everytime I come close I'm going to pick him up, and I would if it helped but it doesn't he throws fits constantly doesn't matter what I do. Other then that he is very happy and playful, getting back to his normal, all though a bit more angry, then before but I'm hoping once he's off all the meds and at home, where nobody messes with him constantly, he will be back to his happy self. Hoping to get more then 5 hours of sleep tonight and ready to spend a little alone time with my hunny tomorrow;) It feels like forever since we have been alone. It does make me sad that I won't get to spend a whole lot of time with my kiddos, but our marriage needs a little tlc too. Balancing all this is sssoooooooo hard:( Ready to be home, praying it will be soon!!!!