June 12, 2013

Hi:) we have been doing good, Jo's being a troublemaking, stinker of a boy. He's walking, running and talking up storms. He's 27 pounds of pure ornery BOY. Sometimes it's wonderful and others, like today, It's tiring! We are enjoying summer break:) Hoping to get some good quality time in with my kiddos, to heal and enjoy each other a little more then we have been lately. I wanted to share something I read today,   "The normal response to trauma is first to freeze, then to try to run, then to fight, and finally, to submit." thought it was interesting, many  CDH families deal with PTSD, my family included. My thought on it is we did it backwards, we submitted, we fought, were still in freeze mode and not sure if we will ever run from it. Though I wish I could, I'm not sure how you could run away from such a little person who depends on you so much. Is it overwhelming, absolutely. Is it hard, definitely. But it's the most rewarding thing I have ever done, to see him do things drs said he wouldn't, he couldn't and shouldn't, makes every moment in this INCREDIBLY rocky roller coaster of a ride, worth it:) 

We have an appointment with his cardiologist tomorrow, I'm a nervous wreck and then some. We also have an NICU graduate reunion at the end of the month, which I'm very much looking forward to:) Love showing off my little miracle boy!!