Happy Thanksgiving:)

Happy Thanksgiving:) lots to be thankful for, God, health, husband, kids, family and friends:) Had hoped to be home by now, but it is right around the corner. Many of you know that Joseph went to surgery( number 7) on Monday. Well he had a Nissen fundo, which is where they wrap the top of his stomach around his esphagus. They also put back his Mickey button:( He also had a hernia in his private area, so he had that fixed too. He did good, very little scar tissue, which has made for a speedy recovery. He is up to full feeds:) they have also taken off his oxygen:):)Praying it will be for good this time, it's been off since 4 yesterday, but we will see. Last time it lasted for 24 hours:/

Thank you Lord for giving us Joseph he has taught us so much in his short little life. Not only in our physical life but our spiritual life as well. For my wonderful husband who has done an excellent job of holding down the fort. For my mommy who has been there for us so much. For the health of all our children, Joseph has his issues but you have always healed him for us. For drs, nurses, paramedics, flight for life and fast responders. If it wasn't for God and all those people, Joseph wouldn't be with us today. For Your constant watchful eye over us and always knowing what we need. You have blessed us so much, and we are so grateful for everything. Thank you:)

Have a happy thanksgiving:) Eat some turkey and fixin's for me:)

Wednesday November 16, 2011

Sorry these are getting so spaced out, but it's been hectic this week. First let me say Joseph is doing good and looks great on the outside. But the inside of him has some issues that need to be fixed. I already shared about his swallow study, and all that followed it. So a few of the drs that have helped out with josephs care were concerned that he might have reflux. That lead to them doing a test yesterday to see if that was the case. Brokenhearted I have to tell you he does reflux a lot, i will bluntly tell you as his dr told me, this could kill him if we don't fix it. Monday afternoon Joseph is going in for his 7th surgery of his short little life. They are either wrapping his stomach 270 degrees or using some type of patch like thing to wrap around the bottom part of his esphagus. He will also get his Mickey button placed back in and will have it for an indefinite amount of time.

This breaks my heart:')

Lord you have plans for this boy that I cannot see, I only ask that Your will be done, and not mine. I give him to you with my whole heart, He is yours forever but ours only for a moment. I thank You so much for letting us have him, he is such a sweet boy and he has touched so many lives already. Your will be done, I surrender him to you.

Monday November 14, 2011

Joseph had his swallow study today. He didn't pass:( he did good enough that he doesn't need the g tube put back in, but the dr thinks it would be better for Joe to by pass his throat area. So he keeps the tube down his nose for now and they will reevaluate him in 6 weeks. If he is still doing what he is doing now g tube goes back in. All though this isn't good we finally might have an answer as to why he still needs to be on oxygen. So a little helpful but not what we wanted to hear. Hoping to be able to go home at the end of this week or over the weekend guess we wait and see what else happens this week. The dr wants him off one more med before he can be sent home, if all goes well he should be off it by Thursday or Friday. If not I think I'm going to go home for the weekend if he's not so I can be home for zacherys birthday on the 21.

Sorry it's taken so long

Joseph had a rough start to this week. But he is doing so good now. He is driving me a little crazy and he frustrates me beyond words cause he's not going to sleep as easily as he did at home. He thinks everytime I come close I'm going to pick him up, and I would if it helped but it doesn't he throws fits constantly doesn't matter what I do. Other then that he is very happy and playful, getting back to his normal, all though a bit more angry, then before but I'm hoping once he's off all the meds and at home, where nobody messes with him constantly, he will be back to his happy self. Hoping to get more then 5 hours of sleep tonight and ready to spend a little alone time with my hunny tomorrow;) It feels like forever since we have been alone. It does make me sad that I won't get to spend a whole lot of time with my kiddos, but our marriage needs a little tlc too. Balancing all this is sssoooooooo hard:( Ready to be home, praying it will be soon!!!!

Monday November 7, 2011

Had some beautiful rain this morning:) Joseph is being a stubborn boy. Or should I say his lungs are stubborn, his left lung still looks real bad, his right has improved. He is on what they call high flow oxygen @ 4 liters with 40% oxygen. Until he gets off the high flow we cant start bottle feeding:( He also needs to be on lower doses of his methadone, adivan, and clonadine so all his muscles are nice and awake. So hopefully before December we can be home. Miss my home, kids, husband, mommy and just our everyday routine. But the end is in sight and that makes me happy, a little anyway.

:( :) :( :)

Joseph woke up this morning with very bad wheezing, and very upset. But after he had 2 breathing treatments and all three of his medications, he is doing and sounding alot better. His body has gotten so use to his medicines that if he doesn't get them on a schedule he withdraws very badly, causing him to get upset and have a hard time breathing cause his throat is swollen from the tube. They are completing his antibiotics today, giving him a steroid for the swelling, and just keep him comfortable. He is loving his paci, so hopefully he will be excited about his bottle:) The dr said one more week, but we shall see what Joseph has to say about that. Really wish it would be sooner, but if Joe needs more time we will just have to wait until he is ready.

Best Day In Weeks:):):)

JOSEPH IS OFF THE VENT:):):):):) he is doing wonderful, I got to hold him for a little while. He's not feeling hundred percent yet but he is getting there.

Momma is ecstatic:) Feels so good to see that sweet smile:) Ready to hear his voice again but he's getting there:) Thanks for the prayers everyone:)

:):):):):):):):)

Joseph is doing great:) they have the vent set so he has to do all the work, but takes over when he gets to tired. He is playful and happy. Can't wait to hear him talk and laugh, miss that so much already. I got to get out today with Lisa and Lindsey Wilhelm from Wellington:) Went to lunch at logans and later on went to walmart. Got Joseph some bottles and a pacifier, hopefully he will use them soon.